The whole idea that I felt so good after acupuncture that I didn't need to take anything to sleep backfired....big time. I got about 2 hours of sleep and went into day 2 a total zombie mess. I gave in and took the anti nausea meds, which then put me in a medicine haze for the rest of the day. That day was so far the low point. I felt better the next, and better still today (and am taking something every night to sleep).
I came to the realization on sunday morning that I need full time help for taking care of Thomas. I was delusional I suppose to think that maybe I could take care of him part of the day, with help half the day. 48 hrs after chemo I had barely held him and was not contributing at all to his care. The nausea comes in waves....the fatigue hits like a wall, and the haze is ever present. Lucky for us my sister Elizabeth is out of school in the afternoons so is coming over almost everyday to take care of Thomas in the afternoons. So far we are patch working the mornings with help from all over (xoxo to you Pip for this morning!) and just need to get to June doing this until E is out of school and can come full time.
I am hopeful that Saturday was my worst day and that everyday gets slightly better. The only thing that hasn't gotten better is the fatigue, and unfortunately I know that it will get progressively worse. But I am learning how to lean into it instead of struggle against it - short litle cat naps and just taking a moment to rest until I can get back up again.
No comments:
Post a Comment